Day 3! Ready to get going!

   As you can see chase is looking better and better! He has been taken off ALL of his IV meds. So no drip lines (meds)! But he is still getting some oral pain meds obviously! Look at the chest! :) He still is getting O2 in his nose and has a PICC line in just in case something happens they can get the meds right in. He also has some electrical wires coming out of his chest for a pace maker, again, just in case. He also has some monitoring wires on his shoulders for temp, and heart.
    His skin is a little red from the tape and he is a little puffy but that is to be expected. He is also eating a ton of pumped milk and some soy formula.
   But as you can see he from the top photo he is kicking and playing a little. We still have to wear a mask, gloves, and a gown to go up to his bedside because he is quarantine but that is not expected to last much longer!
   Again thank you for all your prayers! We are truly blessed to have amazing friends and family in our lives! :-D

Day 2 for Chase!

    Hello everyone! Thank you so much for your thoughts and prayers for Chase! 2 days after the surgery Chase is doing pretty dang good! They have removed a lot of tubes from him as you can see in the photos above. They took out his breathing tube, a couple of his IV drip lines, and the pace maker lines are out. They are trying to take him off the IV pain killers and give them to him orally. They are hopefully going to remove the chest drain tube today since he is not bleeding that much and then take the tape off of his incision to let it air dry.  They had to use restraints the first day so he wouldn’t pull out any wires or IVs or anything. They have since taken those off.  He is currently on only three meds and soon it will be two.

     He did, however, have a little temperature. So the nurses and doctors decided to take some cultures. They took cultures from his nose, urine, and blood to see if he has a virus or bacterial infection. If he has a virus they just have to let nature run its course. If it is a bacterial infection they will prescribe him an antibiotic according to the specific bacteria they find in the culture. In contrast a normal person goes to a doctor for an infection all family doctors just give you a generic common antibiotic. However, Chase will get an antibiotic specifically for the exact infection he has….If any. But hopefully he just doesn’t have any infections.  He also had an episode today when his blood pressure spiked and he was very angry when he was being fed so the nurse had to give him something to calm down and breathe.  He is a feisty little kid!!

     His pediatrician called us yesterday and we super excited on how it was doing.  He was very impressed of where he was at this point.  He was not expecting Chase to be this far along and is about two to three days ahead of the time line he predicted.  He said that sometimes kids with Trisomy 21 take longer and have more complications due to the nature of the genetic defect.  We are glad to hear this and hope things still go well.

    Oh and here is a great link about what surgery he had! Check it out! http://phoenixchildrens.staywellsolutionsonline.com/Library/Encyclopedia/90,P01767?PrinterFriendly=true 

Morning After

                Got a call just before 7 today from the doctor. Chase has been taken off all his breathing machines and is doing well. They are going to try to feed him now and we will see how his tummy does. There is a waiting period to see if he need to be put back on the breathing machine but that will be over in a couple hours and we will go from there. He is doing really great so far. The doctor also said when chase woke up that he starred straight at him for a while gave the doctor a big smile and said it was a pleasure watching over him last night. Thanks for ALL the support and PRAYERS!!!  We will get more pics up soon! :)

Out of Surgery

    Well Chase is all out of surgery and everything went really well. He is still pretty knocked out from it and looks like he is hooked up to every device imaginable. They have to monitor his heart very closely tonight as they had to completely stop his heart during the 4ish hours of surgery, then restart it before sealing him back up. Most of the tubes and lines should be slowly taken out over the next couple days. He has tubes to help him breath, tubes to drain extra fluid from around his heart, pace maker lines to his heart, and 4 iv lines for drugs.

Into Surgery!

             
           Chase here just before going into surgery. You can see on his legs he is all tagged up and ready to go. We met with the surgeon and the anesthesiologist just before to go over things. He went into Pre-Op at 7:30am and they set him up with IVs and all his tubes and medicine. The RN came back out about 9:30 to tell us they just actually started the procedure, so he has about 3-4 hours of actual surgery now.....

Doctor Visit To Set Date for Surgery!

Just waiting for Chase's doctors appointment...... So we finally were able to meet with the doctor and go over surgery stuff, but truthfully they didn't tell us anything new........ But we set a date of January 31 for surgery at 7:30am!

6 months old!

Chase just had his six month check up and is doing pretty great! He weighs 12lbs 10 oz. and is 24 1/2 inches long. He also got a good handful (7) of shots today and is a surprisingly great mood considering that! We will meet with the heart surgeon on Friday morning to go over everything and to get a date for his surgery (hopefully the very end of this month or the very beginning of this next month).  Melissa's parents will be flying in then to help us out with everything here for a while too which will be great. We also having some amazing friends here to help support us, especially one family who have adopted two children with Down's Syndrome. They have been an amazing support and resource to us and are very blessed to have them in our lives.

 He is a very happy kid also!

 Chase and Jocelyn below! Jocelyn has been really wanting to play with him more lately and asks him to go with her to her bedroom to play with her toys.